Additional Info

• Advisory Council Member:

  Prof Gerard Berry
  E: Send email

• National Societies:

  Society for Inherited Metabolic Disorders (SIMD)
  
  Society Website
  http://www.simd.org 

  Annual Meeting
  SIMD Annual Meeting 2026
  May 17-20, 2026 – WYNDHAM GRAND RIO MAR, RIO GRANDE, PUERTO RICO
  Please see this website for full details: https://simd.swoogo.com/2026/home 

  Committee Members
  
  President
  Dr. Debra Regier
  Send email

  Vice-president
  Dr. Reid Sutton
  Send email
  
  Secretary
  Dr. Ashlee Stiles
  Send email
  
  Treasurer
  Dr Cary Harding
  send email

• About the Society:

  Established in 1978, SIMD aims to increase knowledge of and promote research in inborn errors of metabolism in humans and to stimulate interactions between clinicians and investigators in inborn errors of metabolism. The Society seeks to foster training and maintenance of a core of qualified investigators and practitioners in the field and to promote public understanding of inborn errors of metabolism. These objectives are achieved by facilitating communication and interaction among experienced clinicians and investigators and by advocating for patients and research through public policy forums.

  The rarity, uniqueness, and variability of metabolic disorders, as well as the need for an individual approach to treatment of each disorder, make treatment of inborn errors of metabolism very complicated. Moreover, clinical training of medical geneticists to care for patients with these disorders has lagged behind the entry of affected patients into the health care system.

  In order to address the urgent need for educational collaboration, the Society for Inherited Metabolic Disorders (SIMD) has established the North American Metabolic Academy (NAMA). NAMA will provide a forum for providing medical genetic and biochemical genetic trainees to develop a base of knowledge of inborn errors of metabolism and exposure to the diagnosis and management of metabolic disease. Taught by an internationally renowned faculty in an informal setting that emphasizes interaction with other trainees, participants will learn an approach for understanding and managing metabolic emergencies and long-term treatment of biochemical disease. Ongoing access to an interactive web site will make NAMA a long-term opportunity for learning for participants.

  An early history of SIMD was written in 2006 from the personal perspective of the late Dr. Louis ‘Skip’ Elsas, founding SIMD President, posted here.

  In 2025 SIMD has just over 600 members.

  Dietitians Group
  In the United States many metabolic dietitians are part of a separate organization called GMDI who we have collaborated with in the past with joint meetings. In addition, we have a GMDI representative on our SIMD Board of Directors.

  Adults Metabolic Physicians Group
  We have a workgroup for Adult Metabolic Providers. This group has presented sessions at the SIMD Annual Meeting, American College of Medical Genetics and GMDI.

  Additional Information
  Please see www.simd.org for more details about events, webinars, meetings and activities of SIMD.